cystic fibrosis

Some days the reality of what we are dealing with is a little more clearer than others. Take today for instance, I am tickled to death that I have found hand sanitizer dispensers that will hang on the wall at the house. I have also spent the last 3 days pricing lamanent flooring for Payton's room b/c it will be easier to keep sanitized. Or like a few days ago when I had a meltdown in the middle of Target b/c I put her in the shopping cart without sanitizing it, just covered it with a blanket. Most days, it isn't that big of a deal and then others, I am down right obbsessive. You never know which way my mood will swing.

On the plus side, our walk last weekend went great! Yes, we got lost on the way over there and I was in tears by the time I got there (partially b/c I was lost and partially b/c I was upset b/c of why we were going). Once we finally arrived, I was just so excited to meet others who know exactly what I deal with face to face. We did breathing treatment and cpt for the first time in public without someone giving us a funny look for "beating" on our child. It was comforting to be able to sit there and not have someone stare at us the entire time we were doing her treatment.

Our next grand adventure into this is education day at the hospital. We were going to do the walk that day since it is my birthday but moved it so we can go to education day. Thankfully, Josh is going with me. He is a little more unfamiliar with everything that goes on at the hospital since he works all of the time and isn't able to make drs visits with us. We are going up the night before and spending our first kid free night since Payton has been diagnosed. She is staying overnight away from us for the first time but she will be in capable hands. I will let y'all know how that break down goes. If it is anything like the first time Connor stayed overnight away from me, I will proably be in tears before it is over!