cystic fibrosis

Some days the reality of what we are dealing with is a little more clearer than others. Take today for instance, I am tickled to death that I have found hand sanitizer dispensers that will hang on the wall at the house. I have also spent the last 3 days pricing lamanent flooring for Payton's room b/c it will be easier to keep sanitized. Or like a few days ago when I had a meltdown in the middle of Target b/c I put her in the shopping cart without sanitizing it, just covered it with a blanket. Most days, it isn't that big of a deal and then others, I am down right obbsessive. You never know which way my mood will swing.

On the plus side, our walk last weekend went great! Yes, we got lost on the way over there and I was in tears by the time I got there (partially b/c I was lost and partially b/c I was upset b/c of why we were going). Once we finally arrived, I was just so excited to meet others who know exactly what I deal with face to face. We did breathing treatment and cpt for the first time in public without someone giving us a funny look for "beating" on our child. It was comforting to be able to sit there and not have someone stare at us the entire time we were doing her treatment.

Our next grand adventure into this is education day at the hospital. We were going to do the walk that day since it is my birthday but moved it so we can go to education day. Thankfully, Josh is going with me. He is a little more unfamiliar with everything that goes on at the hospital since he works all of the time and isn't able to make drs visits with us. We are going up the night before and spending our first kid free night since Payton has been diagnosed. She is staying overnight away from us for the first time but she will be in capable hands. I will let y'all know how that break down goes. If it is anything like the first time Connor stayed overnight away from me, I will proably be in tears before it is over!

Sick again..............

My life is a constant merry-go-round of sickness. Thankfully though, this time it isn't something we have to be stuck at home over. She got off with both ears being infected. Thankfully, it was nothing respiratory related. It wouldn't have been so bad, but we spent Tuesday night in the er b/c she was covered from head to toe in hives from the augmentin she was on. Turns out, she is allergic to penicillin.

Now that the hives are almost completely gone, we got out of the house today and took a walk to see the FFA cows. Payton then played, for the first time, in the sand box with her brother. It was too cute to see her sitting there, digging in the sand with both hands. I will be excited when she masters her attempts to sit up. She is slowly getting there.

Connor, I have learned, is way smarter than I realize sometimes. As we are watching Blue's Clues today, they are putting the steps to making muffins in order (mix, pour in the pan, bake, eat). If you give Connor that list in any order and ask him what you do first, he will tell you mix the muffins. You then ask him what comes next and give him the list again (minus mix) and he can tell you the next step! I was impressed with my little 2 year old boy! Sometimes though, being smart gets him into a whole lot of trouble b/c even at 2, he is a smart mouth. What can I say, he gets it from his mama!

All in all, things are pretty mundane around here. We do the same routine, day in and day out, with very little changing. We don't live an exciting life but it is definitely never boring!

Breathing treatments

So, at 4 months old, Payton has started crying for her breathing treatments. Take this morning for example, I had to wait an hour after she ate to give Payton her treatment. 15 minutes before it was time to start, she starts fussing. I can't make her comfortable. So we sit down and get the treatment set up. I notice that she is wheezing a little, which is normal. I get it ready to go, turn on the machine, and immediately, Payton quits fussing. I am not sure if it is really smart or really sad that she already is letting me know when she needs a treatment. She has gone from always crying through them to crying for them. She already knows that it will make her feel better! Hopefully, she will always feel this way about them!