Introduction

Hi! I am Kamie. I am a stay at home mom with a very busy life. I have two children. Connor, who is 2, and Payton, who is 2 months. I have two very special children.

Connor was born at 35 weeks. When he was 2 days old, the NICU doctors discovered a blockage coming down from his bladder. He was flown at 4 days old to Texas Children's Hospital, where we spent the next 11 days. When he was 11 days old, they did surgery to fix the blockage. At his 1 year check up, his left kidney still held fluid but the doctors are waiting to his 2 year appointment to see if it has corrected. We will be finding out Monday how it is doing but it will be something that no matter what happens will have to be checked often to make sure he isn't having any problems with it.

Well fast forward 18 months from Connor's birth. We found out I was pregnant with Payton and talked to Connor's doctors to make sure we didn't have to worry about the new baby's kidneys. We repeated ultrasound at 30 weeks and everything was fine, so we prepared to welcome a healthy baby. Payton was born October 30, 2010 and she was as healthy as can be, or so we thought. The end of November we received a call from her pediatrician that her newborn screen came back positive for cystic fibrosis. They told us they would send us for a sweat test, that she could just be a carrier. They performed the sweat test on December 7, 2010. That afternoon the doctor called us with the results: she has cystic fibrosis. We were floored. You always expect to deliver a healthy child and here we were with two that had major health issues. Not the thing two young parents expect to be handling.

Now, a month after diagnosis, we are doing good. We are settled into our routine and the treatments are becoming a part of our daily lives. We will know Monday if Connor is still hold fluid on his kidney or if it has dissapeared like the fluid on the right kidney had. We will also find out if he too has cystic fibrosis since they are testing him Monday also. It has been a roller coaster of emotions these last two years but the Lord is holding us together and giving us strength when we don't think we could handle another thing. He tells us that He will never give us more than we can handle and so far I think He is helping us handle all of this very well!